Contact Us

If you have any questions, comments, or concerns, click here to send us an email. If you'd like to keep up-to-date with BITSS, like us on Facebook and follow us on Twitter and Instagram. You can also subscribe to our newsletter.

Our mailing address is:

  Boston International Turner Syndrome Summit
  P.O. Box 135
  Mansfield, MA 02048

To get in touch with our webmaster, click here.

National and Regional Organizations


Turner Syndrome Global Alliance (TSGA)
      TSGA was founded by parents of girls and young women with Turner syndrome. We aim to have a direct impact on the lives of girls, women, and families living with TS by working to include TS in the national conversation on genetic research. We are the voice for a patient and parent perspective as we seek collaboration with scientists, researchers, and doctors to ensure that TS research and resources have meaningful outcomes.

Turner Syndrome International
      Profiles of national TS organizations are listed here.

North America

Turner Syndrome Society of the United States
      State and regional chapters are listed here.

Turner Syndrome Society of Canada
      Canadian regional associations are listed here.


Turner Syndrome Support Society of the United Kingdom
      Regional friendship groups are listed here.

Association des Groupes Amitié Turner (France)
      Regional groups are listed here.

Deutsche Ullrich-Turner Syndrom Vereinigung (Germany)
      Regional groups are listed here.

Síndrome de Turner - Grupos de Apoio em Portugal (Portugal)

Öterreichische Turner Syndrom Initiative ÖTSI (Austria)

Selbsthilfegruppe Turner Syndrom Schweiz (Switzerland)

vzw Turnerkontakt (Flanders / Belgium)

Turner Contact Nederlande (Holland / Netherlands)

Suomen Turneryhdistyksen kotisivut (Finland)

Asia & Oceania

Turner Syndrome Association of Australia, Ltd.
      Regional branches are listed here.

האגודה הישראלית לתסמונת טרנר (Israel)

한국터너협회 (Turner Syndrome Society of Korea)