Testimonials

    From Attendees

This week may have been the most important week of my life.

[I learned] that I am not alone in this journey and that there are people out there just like me.

It was truly such a great experience. I loved getting to explore Boston and connect with other girls with Turner syndrome.

I made a lot of friends. Thanks so much!!! You changed my life.

When asked, “What would you say to someone thinking about coming to BITSS for the first time?” one attendee shared: “BITSS is honestly such a wonderful experience. You'll learn about other people, and yourself. You'll get a taste of what living in a dorm/apartment is like. You'll have a great time.”

Going to BITSS is like having a second family. All the other girls are there to talk to, and it's great to know they will be able to relate to the problems I experience because of Turner syndrome. Not only does it give a great sense of community for me, but the experience in all is so much fun and gives me a chance to just take a break from everyday life. It's a chance to learn more about my condition, have people right there who'll understand my struggles, and just enjoy time with these girls who've become like sisters to me.


    From Families

This camp was not only an amazing opportunity for my daughter to meet other girls with TS, learn more about TS, develop friendships, and gain confidence, this camp taught me so much about her and what she can and will do!

My daughter doesn’t have as many chances to be purely joyful and social. Making friends is hard for her and she doesn’t have as many supportive adults and young people around her on a daily basis (outside her family). We are grateful that she had this experience again and that all of you did so much to make her feel included and valued.

I want to thank you from the bottom of my heart for all that you have done and continue to do for the BITSS program. I know you have poured your heart and soul into working on this program. I can only imagine the enormous time and effort that went into this undertaking. You thought about everything that the Summiteers would need to have the best week, from medication dispensing and the food, to the variety of activities and learning experiences and even how to manage social media. I could see the transformation on my daughter's face in the photos that were sent. She was happy and enjoying herself! She learned so much during this week and came home a changed person. Besides connecting with others with TS, she was exposed to activities and places she was adamantly opposed to in the past, and learned that she actually enjoyed them.

I can’t thank you, the volunteers, and all the amazing others that make BITSS a possibility! My daughter came home a different person in such a positive way! She is more confident and more mature, recognizing areas of her development she needs to work on, and learning more to be self-sufficient. She tells everyone about how much fun she had and can’t wait to go back again next year!


    From Staff

It was a privilege to be a part of it. The experience you guys have started is something that growing up with Turner Syndrome I would have loved. These kids are very lucky, and I learned immensely this week through them and all of you.