Participant Testimonials

This week may have been the most important week of my life.

[I learned] that I am not alone in this journey and that there are people out there just like me.

It was truly such a great experience. I loved getting to explore Boston and connect with other girls with Turner syndrome.

I made a lot of friends. Thanks so much!!! You changed my life.


Parent Testimonial

I want to thank you from the bottom of my heart for all that you have done and continue to do for the BITSS program. I know you have poured your heart and soul into working on this program. I can only imagine the enormous time and effort that went into this undertaking. You thought about everything that the Summiteers would need to have the best week, from medication dispensing and the food, to the variety of activities and learning experiences and even how to manage social media.

I could see the transformation on my daughter's face in the photos that were sent. She was happy and enjoying herself! She learned so much during this week and came home a changed person. Besides connecting with others with TS, she was exposed to activities and places she was adamantly opposed to in the past, and learned that she actually enjoyed them.


Staff Testimonial

It was a privilege to be a part of it. The experience you guys have started is something that growing up with Turner Syndrome I would have loved. These kids are very lucky, and I learned immensely this week through them and all of you.